Wisbech family raise hundreds for a special walker for their young disabled daughter
PUBLISHED: 09:10 19 December 2017 | UPDATED: 15:12 19 December 2017
A family have sent a massive thank you to everybody who helped raise more than £3,300 to buy a special walker and pushchair for their young disabled daughter.
Enya Fysh, four, was born with a rare medical condition which means she cannot talk or walk and has to be tube fed with a special diet.
She is also visually impaired.
Her parents said they can see how much benefit she gets from having the independence of her own walker at Meadowgate school in Wisbech so wanted to give her that at home so set up a Just Giving page to raise the money needed.
Little did they know that within just a few weeks they would smash their target to raise enough for two pieces of expensive specialist equipment.
Mum Stacey Chilvers said: “We’re overwhelmed by the support, we cannot thank people enough.
“At home Enya relies on me or her dad to pick her up and carry her around, this will give her some independence.
“She is a really happy girl, always smiling, the walker is going to be great for her.”
Stacey and Mark Fysh set up a Just Giving page for their daughter a few weeks ago.
Then Stacey’s dad Barry, who has a fishing lake in Norwich, held a charity fishing match.
Next up a family friend hosted a day of Santa’s grotto, children’s games, tombola, raffles and stalls in Outwell, which brought in a staggering £1,522 in just one day.
Stacey said: “We can’t believe how we smashed our target.
“It means instead of just a walker we can now also buy a special pushchair.
“Left over Santa gifts have been donated to a local man who takes goodies to Great Ormond Street Hospital. We wanted to give them there as Enya is under their care and they’ve been brilliant with her.”
Enya was born with a rare condition called propionic acidemia, an inherited disorder in which the body is unable to properly process certain parts of proteins and fats.
In most children the condition becomes apparent within a few days after birth.
For the first two week’s of Enya’s life, things were really tough, Stacey said, as medics carried out a string of tests to work out what was wrong.
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