Grieving March family raise £12,000 for epilepsy charity SUDEP in memory of fearless Nikey

21:48 09 March 2014

Nikey Robinson.

Nikey Robinson.

Archant

The family of a 23-year-old epilepsy sufferer who died suddenly almost a year ago has raised £12,000 to fund research into the condition.

Nikey Robinson, of March, died of Sudden Unexpected Death in Epilepsy (SUDEP) in her sleep on March 21, 2013.

Since then, her parents Caron and Peter Robinson and her sisters Jaime and Ceri, with the help of friends, have embarked on the Nik’s Shout for Epilepsy campaign.

Nikey’s mother, Caron Robinson, said: “At its worst, she would suffer 200 seizures a month, but Nikey lived her life to the full and without fear.

“She met every challenge and rose to it. She had no limits and wanted to try everything.

“She went on holiday abroad, did bungee jumps and went on the biggest rollercoasters. Nikey wanted what everyone else took for granted.

“She was a beautiful, selfless, generous soul and an advocate for others less able.

“With this in mind we could think of nothing less apt then to raise awareness and funds for epilepsy charities in her memory and honour, in the hope to provide help and advice for others whose lives are affected by epilepsy.”

There are at least three epilepsy-related deaths a day in the UK, the majority from SUDEP.

Nik’s Shout For Epilepsy supports three charities - SUDEP Action, Young Epilepsy and Epilepsy Action.

They have held bingo nights, race nights, discos, spiritualist evenings, jewellery sales and zumbathons to raise awareness of epilepsy.

Jade Fell and Lola Dack took part in a tandem skydive and family friend Paul Harlock has taken on a gruelling year-long weight loss challenge.

Nikey attended both school and college at St Elizabeth’s Centre in Bishop’s Stortford, which provides education, care and medical support to people of all ages who have epilepsy and other complex needs.

One of the chief aims of the campaign is to raise funds so that the centre can hold a Leavers Ball every year.

Nik’s Shout For Epilepsy is holding a bingo night on March 28 at Benwick Village Hall and a balloon release is planned to coincide with National Epilepsy Awareness Week, which runs from May 19-25.

To give your support to Nikey’s campaign call 07762 969693 or visit the Nik’s Shout For Epilepsy Facebook page.

0 comments

More news stories

Yesterday, 17:05
Mick George Quarry Block Fen Mepal. Picture: Steve Williams.

A forensic genetics expert says trying to establish the identity of the severed head found at Mepal quarry will be extremely difficult if police have no leads to go on.

Yesterday, 15:05
Seth Dixon, 7, was knocked over and killed by Amy Asker in 2014

A motorist who knocked down and killed a seven-year-old boy while talking on her mobile phone was fined just £90 and given five points on her driving licence.

Yesterday, 14:31
Billy Lee

A memorial service is planned for popular trainee electrician Billy Lee who died from an aggressive form of cancer.

Yesterday, 11:35
Female drink driver arrested for being three times the limit after crash on Begdale Road, Elm

A woman was arrested at 9am this morning for being more than three times the limit after a crash on Begdale Road, Elm.

Most read stories

Most commented stories

HOT JOBS

Show Job Lists

Digital Edition

Image
Read the Wisbech Standard e-edition E-edition

Newsletter Sign Up